my body is
while my mind lives
in future worlds
will never become a
part of my past.
my body is
while my mind lives
in future worlds
will never become a
part of my past.
how can i be strong for you
when my bones have been crushed?
how can i comfort you
when i sleep in blankets of sadness?
how can i hold you
when my arms carry the weight of the world?
how can i listen to you
when the voices in my head are screaming?
how can i walk a mile in your shoes
when i can’t even get back on my feet?
how can i be part of your life
when my own life isn’t whole?
how can i be anything to you
when i’m nothing to myself?
— on being there for you
Who am I that the world
chooses to rest on
That sadness floods
my veins –
each step a concrete block?
That my bones
piercing, piecing the distance –
a bridge of pain?
a glass bubble
shattering with every
Where is peace? Trapped
in the pages
of a book?
covered in dust.
hold my thoughts
Perhaps the oak
will accept these
words – another story
absorbed by those
no longer standing.
If I asked you to pick the photo that shows me in a depressive state, you’d probably pick the second photo. Right?
Well, you’d be both right and wrong.
Those of us who carry this darkness around with us, are very good at showing the world what they want to see. Or better yet, shielding them from what they don’t want to see.
These photos were taken on the same day. One was posted to Facebook. One wasn’t.
Why is it that mental illness is so hard to talk about? In my experience, it’s just easier not to talk about it. In order to avoid questions that I either won’t be able to answer, or choose not to answer because the person asking won’t like or understand the answer.
Sadness is an emotion. Emotions can be easily understood, or accepted because we all feel them.
Depression, or Major Depressive Disorder is a state of being. It doesn’t run it’s course and then leave. It isn’t a reaction to something that happened or didn’t happen.
It lives inside of me all the time. Most of the time it stays hidden. But it’s not something I have control of. I can’t just choose to get over it.
So I’ve learned to smile for everyone who needs it.
Is there someone in your life who might be smiling on the outside, while struggling on the inside? Are you?
Don’t be afraid to ask for help. And if you aren’t comfortable talking face to face, you can text the Crisis Text Line (741-741). The most important thing to know is that you are not alone. You have never been alone.
Crisis Text Line: 741-741 to text with a trained Crisis Counselor. The service is free, confidential and available 24/7.
Yesterday I had an article of mine published on The Mighty’s website. If you aren’t familiar with the site read this for a full explanation of who they are and who they represent. If you are familiar with them, then you already know how amazing their content is and why I feel so honored to be a contributor for them now.
I would absolutely love it, and you, if you would take the time to go over and read the article if you haven’t already. As a writer with a book on the horizon, it is imperative that I build a platform for my work. The more readers I have, the more likes and follows, all of these add to my platform and will help me out in the long run.
The edits on my book are nearly finished and I will be submitting them to an agent. If all goes well, the changes will be accepted and she will take me on as a client. The story on The Mighty is just one of the many parts of my bigger story, my book, He’s Not Broken.
Stick with me guys. I have a lot to say. If I play my cards right, then maybe one day I’ll be able to meet my supporters in person on book tours. It’s a dream of mine.
If you have a moment, please head on over to The Mighty and check out my piece on Tourette Syndrome.
* I am writing this so that others can see one of the many faces of depression. I am not seeking pity or attention.
One thing I have always been in my writing is honest. So this is me being honest, unfiltered and raw. I am not editing this at all, so please forgive the James Joycian run-ons and stream of consciousness, it’s the most accurate representation of how my mind is working (or not working) right now.
Tonight, I feel broken. I feel like I can’t move. I can’t breathe. There is something inside of me that won’t work no matter how much I tinker with it. And, believe me, there is much tinkering going on.
I don’t like this. I don’t want this. But this is me. I have clinical depression. At any given moment it visits me. It doesn’t care if I have everything I need, everything I want. It comes without warning and stays for as long as it wants. The sun may be shining. The clouds cleared, but inside of me the storm rages despite the current forecast. I try to fight it, but it’s like fighting the undertow. It. Just. Doesn’t. Work.
But think of all the good things you have. You have so much to be thankful for. No shit. I know that. But my depression doesn’t care. Those of you who say this, I don’t fault you. I don’t hate you for thinking it’s as simple as that. In fact, I think you know it isn’t, you just don’t really know what else to say. It’s okay. I don’t know what to say either.
It’s like someone asking you how you are. They are being polite. It’s what you do. It’s not like I’m going to answer by saying, you know what, I’m not good. In fact, I feel like I’m disintegrating. You just don’t say that. It makes people uncomfortable. I get it. It makes me uncomfortable too. 24 hour kind of uncomfortable. Unless there is wine. And then it’s only mildly annoying. Until there’s a sad song. And there’s always a sad song, isn’t there?
But I’m a mom. I can’t “self-medicate” like my mind tells me I want to. I can’t keep a travel mug full of “peace” with me at all times. And, honestly, I don’t want to. It scares me that the wine helps as much as it does. I don’t want to be that person. But a part of me is that person whether I like it or not.
Then there’s the most awesome part of all. My oldest son also has anxiety and depression. And every time I look at my youngest I wonder if I have passed the curse on to him as well. Do I think I shouldn’t have had kids? Absolutely not! This world needs my kids because they are incredible. But it doesn’t stop me from feeling guilty, which fuels my depression…vicious circle.
Did I mention I’m tired, but I can’t sleep? I feel like I’m losing it most nights as I try to drift off with all of the what ifs shooting off like firecrackers in my mind. Problems that aren’t even my problems. Sadness that doesn’t even belong to me. I am too connected. So connected that I disconnect in order to survive.
I just want to rest. I just want to feel like everything will be okay. I want to trust the words I feed my children every day. It will get better. You just have to believe. There are plenty of days where I feel like I’m just setting them up for the firing squad.
I’ll find my way out. I always have. But every time I surface, I can’t help but wonder when the next wave will hit.
I am a notebook lined with intimate inkings that are not my own.
I am an untrained runner in a marathon with legs that quiver and quit on me.
I am a brittle-backed leaf on bare limbs, desperately hanging on.
I am the earthworm tirelessly trekking the sun-soaked concrete path in search of the cool dirt, my skin shrinking around me.
I am a discarded bag forced by the wind to kite dance, dipping and diving, an empty carcass of plastic skin.
I am bone-tired, and every breath breaks me.
I am all these things on any given day. But I am here, and I am trying.
“Oh I don’t know, Tourette’s can be kind of fun. I knew someone with TS and he would throw the “F” word around all the time,” the stranger said with a laugh.
Silence. Suddenly I was bombarded by the image pain of Jake sticking his finger down his throat hundreds of times a day. I was reminded of the time I stood in the kitchen doorway, unknown to him, as he repeatedly punched himself in the stomach, tears running down his face. He was six. I recalled the angry stares of strangers who judged him every time we were out. And I felt my words stick in my throat as they so often do.
Sadly, this is a scenario that has played out in many forms over the years. I have since learned to speak out for Jake and other people like him who live with the suffering that accompanies Tourette’s and OCD. I can assure you none of them are having fun.
When Jake was diagnosed I was under the impression that his biggest problem would be peer bullying. Kids can be cruel. What I have learned instead, is that adults tend to be the worst bullies of all.
Over the years I’ve wondered about this. Why, when adults have so much more life experience, are so many lacking in compassion? How do they justify such insensitive remarks?
As adults we tend to inhabit our own space, both physically and mentally. The longer we remain earthbound, the easier it is for us to grow cynical and care less and less about the “big” world, concentrating instead on our personal lives. Unless a person’s life has been touched in some way by disability, and special needs, I think they just don’t get it. Instead, they are driven by the media’s skewed stereotypes.
All people with Tourette’s curse. False. Less than 10% are afflicted with coprolalia – a tic that causes them to use obscene language. I once met a twelve year old boy who was deaf because one of his tics was to box himself in the ears. I’ve seen a fifteen year old girl in a wheelchair because one of her tics was squatting while she walked. Hilarious,right?
All people with OCD are neat and are germaphobes. Just give them some hand sanitizer and all is well. False. Jake’s OCD immobilizes him at times, making him unable to leave the house. He struggles every day with repetitive thoughts and fears, causing him severe social anxiety. Good times, yeah?
Clearly, there is no humor in these conditions or any others.
So what’s different about how children process these differences. I think that children are simply more connected to the world than we are. They are newer beings on this Earth and are naturally curious. They haven’t been media-trained in the ways of callousness. We have so much to learn from them, and such a responsibility to protect them from becoming hard-edged.
But I think it’s important to note that compassion is more than just caring. As connected Beings we all need to practice empathy more than sympathy. And if we allow ourselves to reconnect with our spiritual side (not religious – that’s completely different and man-made), we will realize that it’s our natural state because we are all connected.
So how about you? Got Compassion?
*This post is honest. It is painful to write, but I feel that it needs to be said for those who can’t say it.
My son bears the weight of Obsessive Compulsive Disorder (OCD) daily, but this post is not for him. This post is for the parents and loved ones who must learn how to live with OCD as well. I do not wish to take away from the burden he carries; believe me, I have seen him crippled by this intrusive, invisible bully and I wouldn’t wish it on anyone.
But I am here to acknowledge the others who are involved in this journey alongside them. I am here to remind you that we, too, face a bully. However, our bully is easily recognizable every time we pass a mirror.
How often have you retreated behind the safety of a closed, locked door and screamed into a pillow? How many times have you been blinded by the hot tears of frustration as you drive anywhere just to get away? And how familiar is the feeling of guilt that gnaws at you for all the times that you lost it, yelling at your son out of anger? The emotional turmoil is unrelenting.
I have slammed doors and punched pillows.
I have felt so much pent up rage that I’ve resorted to hitting my thighs with fists clenched so tightly that my nails have drawn blood, just so the bruises on my legs hurt more than the ache in my heart.
I have escaped the tension with a few too many glasses of wine. And then slept through my sadness.
I have sat outside my son’s door listening to the quiet of him sleeping, pretending that he’s just like everyone else. Enjoying the silence maybe a bit too much.
I have driven to an abandoned lot, turned the music up as loud as I can and screamed until my throat was raw and I was out of breath.
And each time I’ve berated myself with ugly, angry words.
The same kind of sharp words I have heard my son use on himself on his worst days as he curls up in his chair, the chair that is off limits to the rest of the family because we aren’t clean enough, and cries until he has nothing but shadows left inside him.
The same words I save for the days when I hate myself most. You are worthless. You are a burden. You can’t even help him. Loser. I can’t do this anymore.
There are times that I think if only I had done this instead of that. Said these words instead of those. Maybe things wouldn’t be so bad for him. Maybe he would be better. Maybe I’ve made it worse.
I make myself physically ill worrying over the things that I think I did wrong. But the truth is that on any given day, I’m doing the best I can. My best may not be perfect, but I. Am. Trying.
There is a song in the Sondheim musical Sunday in the Park with George that really resonated with me one day when I was out trying to walk off the voices in my head that were telling me how wrong I was.
Stop worrying where you’re going – Move on.
If you can know where you’re going, you’ve gone.
Just keep on moving.
I chose and my world was shaken- So what?
The choice may have been mistaken,
The choosing was not.
You have to move on.
As parents and caregivers of kids with special needs, it’s easy for us to forget that the best thing we can do is to keep moving.
Some days we will move backwards, tripping over yesterday’s mistakes. Other days we will move forward full of a hope we can barely see. But the only thing that matters is that we are moving. We may not know where we are going, or how we are going to get there, but we will get there.
Yes, we are exhausted. We are overwhelmed. We are heartbroken. We are afraid. We are angry.
But we are here. We are here and we are moving.